I haven’t done a migraine update since July and SO much has changed since then. I’ve worked really hard the past six months or so on my health. Being in a vicious migraine cycle for the past 7+ years was a nightmare and I knew that something needed to change. I couldn’t continue being in constant pain everyday.
Before I continue, please read my migraine story and know that my journey will be different than yours if you also have headaches or migraine. I should write an updated migraine story since I wrote that one in 2018 but I have done many migraine updates since. It took me years to find a Neurologist that worked with me and understood me. My story would be much different if I hadn’t found my current Neurologist.
In July I wrote about taking muscle relaxers at night to help me sleep and lessen the tension in my neck and jaw. I was very skeptical when my Neurologist suggested muscle relaxers but I’ve been pleasantly surprised! I only take them on the weekends because I do sleep almost too well and have a hard time waking up on workdays. But I do notice a huge difference when I take them and it really has helped me.
How many times have I mentioned rebound headaches now? For years I lived off of ibuprofen because I was in constant pain and it was the only thing that made the pain manageable. Taking all that ibuprofen was not only extremely unhealthy but also put me in an endless rebound headache cycle.
I made it a goal this summer to break my rebound headache cycle which meant weaning off of ibuprofen and any other pain medication that I was relying on. It’s almost like an addiction and I didn’t think that I’d be able to get through it. It’s been about 4 months since this journey began and I’m happy to say that I’ve only taken pain medication a handful of times per month since. I still can’t get through a bad migraine without rescue meds but I don’t take anything daily for pain.
I should mention that weaning off of pain medication was very painful. I had about a month of severe pain and basically withdrawal symptoms. I’m still in awe of myself that I was able to break the cycle. I still have daily headaches and migraine cycles a few times a month that last days but I know my overall health is much better now.
Weaning Off Medication
I’ve always wanted kids but it’s felt impossible because I was in constant pain and relied of medication to keep me going. Over the past few months I’ve finally felt like I might be able to start a family which is a huge deal for me. I’ve watched friends and family members start their families while knowing that I might never be able to have that same experience. Now I feel like it’s a possibility.
Because of that, I made the decision with my Neurologist to wean off of my daily preventative medication. These meds were also controlling my tremor so weaning off them meant that my tremor would come back full force. It took about a month for me to completely wean off of them and I really noticed a difference right away. I have a constant headache, tremor, and an increase in migraine days.
It won’t be easy but I hope that weaning off of this medication will be okay. It’s only been a couple of weeks now so it’s hard for me to say. I hope that one day soon I feel comfortable and confident in deciding to start a family. The thought of being pregnant still terrifies me but I hope it’ll be worth it!
So much has changed in the past several months and I feel like I have a lot to be proud of. My journey with Chronic Migraine hasn’t been easy but I’ve learned a lot.