Migraine Update: Decision Time & Leaving my Neurologist

Chronic Headaches and Migraine
Hey, friends!

I finally had a Neurologist appointment last week after being discharged from PT almost a month ago. I thought about writing this after my appointment but I just felt so discouraged that I cried in my car before forcing myself back to work.

Basically, my Neurologist didn’t even read my discharge papers and wanted to put me back on the same medicine I was on before. I put my foot down and told him no because I was on it for YEARS with very minimal results. He was in such a hurry to move onto his next appointment that he didn’t even listen to what I was saying. He prescribed an anti-seizure medication that is crazy expensive.

I am managing just fine right now without any medication. I still have a headache every single day and migraines a few times a month. I really want to try out acupuncture or a chiropractor before trying the prescribed medicine.

I think I have made a big decision though. I don’t want to see this Neurologist anymore. I don’t know if this means seeing another Neurologist or finding a headache specialist somewhere else. All I know is that I can’t justify spending $200 per visit to talk to a brick wall anymore.

My old physical therapist called me on Friday to recommend a book called Grain Brian which apparently goes into how gluten and sugar work with our brains. I ordered it on Amazon and am looking forward to reading it. I really do not want to give up Gluten though.

I want to spend some more time researching before I decide what my next steps should be. Here’s the list of what I am researching:

  • Acupuncture
  • Chiropractor
  • Elimination diet (gluten, dairy, etc)
  • Botox

Things I’ve already tried:

  • Massage Therapy (will do again)
  • Physical Therapy
  • Preventative/Abortive Medications
  • OTC Medications
  • Basic elimination diet (cheese, red wine, etc)
  • Trigger Identification

For now I am just taking it one day at a time and trying to remain positive 🙂 I think things will be much better once I ditch my current Neurologist and find someone who will actually listen and try to help me.

As always, thanks so much for all your support and feedback! I have loved reading your suggestions and have a running list of things to try based on blog comments.

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My Migraine Story

 

Chronic Migraines, Chronic Headaches, My Migraine Story, Migraine Treatments

Hey, hey.

It’s me, back with one of the most personal posts I have ever shared on the internet.

It’s no secret that I have been living with daily headaches and chronic migraines. I have often shared my struggles with balancing life and work with the constant pain. I still don’t have any answers and I may never receive them but I thought I’d share my story because I know that I am not the only one struggling.

I can remember having headaches as a pre-teen but they never lasted that long. My junior year in high school was when my headaches started to become a routine problem but I was able to take an ibprofen and be fine to go about my day.

My mom, sister, and I got into a car accident that same year. My head went through the passenger side window and I still can’t remember the accident. I have a brief memory of waking up in the ambulance but I mostly just remember waking up at the hospital.

After the car accident, I continued to have headaches but they started to get a little stronger. I also started to get migraines that made me sick to my stomach. Senior year was when they became an almost constant problem. My eyesight started getting blurry and it was painful to wake up in the morning. My brain felt like it was pressing up against my skull at all times.

College was when I started to see a neurologist. My headaches had become constant and I was getting migraines a couple of times per month. I was living in the noisy dorms and trying to balance 5 classes, a part-time job, and a minimal social life. It was not how I imagined college to be. For the first time, I was prescribed something for the pain. We discovered early on that I have a bad reaction to most of the commonly used medicines for headache pain. My stomach could not seem to handle it.

I went to London and hoped for the best. My headaches followed me and I spent more time then I want to admit in bed with the blankets covering my eyes. I had to say no to experiences with my friends and missed many of our lunch time adventures. I vowed to make a change when I got home. I didn’t want to keep missing out on things due to my headaches.

Not much changed when I got home and I can’t exactly pinpoint the moment where my headaches started to rule over me. I needed to take ibprofen three times a day in order to function. My head hurt the worst in the morning when I first woke up and at night when I was trying to sleep. The pain would wake me up from a deep sleep. I started to become dependent on ibprofen because it was the only thing that made me feel normal, if only for a few hours.

Now I understand that my constant intake of ibprofen actually began to cause rebound headaches. My body became dependent on it and it made my headaches even worse. I actually felt like I couldn’t function without it. But what was I to do? I was a full time student and almost full time employee at a job where I couldn’t just call off work if I didn’t feel well. It was a never ending cycle.

I graduated in April 2016 and began looking for a full time job in my field. I spent a lot of time in bed in between working and applying for jobs. I was exhausted and didn’t take care of myself. I stopped taking the preventative medicine that my doctor had given to me because it wasn’t working and I felt hopeless.

Fast forward to me accepting my current position and being thrown into a field that I I knew very little about. I thought that college had prepared me for a corporate job but I was very wrong and very out of my element. I was depressed and sick. I started seeing my neurologist again and we discussed the lifestyle changes that I would need to make in order to start feeling better.

It’s been a year and a half and very little progress has been made. I have a headache every single day and am almost constantly nauseous. I struggled a lot in the beginning of my career because the pain made me feel really self conscious and I didn’t want my new co-workers to know my problems. But now they know and understand that sometimes I need to sit in my corner quietly and just work. I try to miss as few days as possible at work but my boss is very understanding if I need to take a break.

So, that’s where I am at. Many years and no answers. I should mention that my mom and grandma both have these headaches so the doctors know that it is genetic. I am also consulting a neurologist when taking medications. It is very important to speak to a medical professional when taking any sort of medication.

I am trying to stay hopeful that my neurologist will find something to help me. At my last visit we discussed trying physical and massage therapy.  I start physical therapy this week and am super hopeful that it will help! And now you know that if I ever go a long time without blogging it is most likely due to having a bad headache week.

Let me know if you have any recommendations! I might write a post on all my tips and tricks for dealing with headaches or migraines.

Thanks so much for reading!

Lifestyle Blog, Life of Hayley

 

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I will survive

Migraines, headache, survival

 

Hey there. Long time, no blog.

“Where have I been?” you ask?

The main reason I took a random leave of absence from the blogging world was my health. I have mentioned before that I have struggled with migraines for the last several years. During the month of December I had three blissful weeks without a migraine. But once January started my migraines were back and were the strongest they have ever been. I felt like I was barely functioning.

I had a good visit with my Neurologist at the beginning of February. Unfortunately, there’s not much more he can do. I will be getting another MRI done in the near future just to make sure that nothing has changed since my last one. My doctor also prescribed another medicine that I could take up to 7 times per month. I ended up not picking this prescription up because a.) the side effects are terrible (I have taken it before) and b.) it was almost $120 for 7 pills.

Other events have also played into my break. I did check one super exciting thing off of my 1st quarter goals which I will be sure to share soon! I am a bit behind on my 2nd quarter goals but hopefully they will be up soon too.

This post was mostly to let you guys know that I’m still here and I still care about my little piece of the internet. I’m just struggling with things that I can’t control. Hopefully my regularly scheduled content will be back soon.

Thanks for reading!

 

Lifestyle Blog, Life of Hayley