2021 Migraine and Headache Awareness Month

June is National Migraine & Headache Awareness month. I’ve been pretty quiet this year in regards to advocating and sharing my experience but I didn’t want the month to pass without me mentioning anything. You can read my story about my migraine and headache experience here for background.

One of the biggest challenges I’ve had with having chronic migraine is suffering in silence. I look pretty normal from the outside so having an invisible illness is hard to explain and advocate for. It’s been even harder now that I’ve entered corporate America and I feel like it’s a major roadblock for my career. My team is super understanding but I hate talking about it and feel bad that I have different needs than the rest of the team.

I try to advocate and raise awareness for those suffering in silence or with invisible illnesses as often as possible but June is always a good reminder to say something. The migraine community is greater than I imagined it would be. I never knew that there were so many resources available and I was even able to find a new Neurologist because of these resources. If you are suffering in silence, please know that you are not alone and there may be resources available to help you too!

I’ve tried many different medications and treatments but over the past 15 months I’ve focused on my health and prioritized putting myself first. This was only possible because I was working from home. I never imagined that what would help me the most was simply being at home in a controlled environment.

I’ve learned a lot about migraine and headaches over the past few years and finally feel like I’m in a better place. With the U.S. opening back up after the pandemic I just hope that I’m able to stay in a good place. I don’t know how I’ll feel going back into the office but I hope it doesn’t ruin 15 months of actual progress.

Photo by Carolina Heza on Unsplash

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Migraine Update: Rebound Headaches & Weaning Off Meds

I haven’t done a migraine update since July and SO much has changed since then. I’ve worked really hard the past six months or so on my health. Being in a vicious migraine cycle for the past 7+ years was a nightmare and I knew that something needed to change. I couldn’t continue being in constant pain everyday.

Before I continue, please read my migraine story and know that my journey will be different than yours if you also have headaches or migraine. I should write an updated migraine story since I wrote that one in 2018 but I have done many migraine updates since. It took me years to find a Neurologist that worked with me and understood me. My story would be much different if I hadn’t found my current Neurologist.

Muscle Relaxers

In July I wrote about taking muscle relaxers at night to help me sleep and lessen the tension in my neck and jaw. I was very skeptical when my Neurologist suggested muscle relaxers but I’ve been pleasantly surprised! I only take them on the weekends because I do sleep almost too well and have a hard time waking up on workdays. But I do notice a huge difference when I take them and it really has helped me.

Rebound Headaches

How many times have I mentioned rebound headaches now? For years I lived off of ibuprofen because I was in constant pain and it was the only thing that made the pain manageable. Taking all that ibuprofen was not only extremely unhealthy but also put me in an endless rebound headache cycle.

I made it a goal this summer to break my rebound headache cycle which meant weaning off of ibuprofen and any other pain medication that I was relying on. It’s almost like an addiction and I didn’t think that I’d be able to get through it. It’s been about 4 months since this journey began and I’m happy to say that I’ve only taken pain medication a handful of times per month since. I still can’t get through a bad migraine without rescue meds but I don’t take anything daily for pain.

I should mention that weaning off of pain medication was very painful. I had about a month of severe pain and basically withdrawal symptoms. I’m still in awe of myself that I was able to break the cycle. I still have daily headaches and migraine cycles a few times a month that last days but I know my overall health is much better now.

Weaning Off Medication

I’ve always wanted kids but it’s felt impossible because I was in constant pain and relied of medication to keep me going. Over the past few months I’ve finally felt like I might be able to start a family which is a huge deal for me. I’ve watched friends and family members start their families while knowing that I might never be able to have that same experience. Now I feel like it’s a possibility.

Because of that, I made the decision with my Neurologist to wean off of my daily preventative medication. These meds were also controlling my tremor so weaning off them meant that my tremor would come back full force. It took about a month for me to completely wean off of them and I really noticed a difference right away. I have a constant headache, tremor, and an increase in migraine days.

It won’t be easy but I hope that weaning off of this medication will be okay. It’s only been a couple of weeks now so it’s hard for me to say. I hope that one day soon I feel comfortable and confident in deciding to start a family. The thought of being pregnant still terrifies me but I hope it’ll be worth it!

So much has changed in the past several months and I feel like I have a lot to be proud of. My journey with Chronic Migraine hasn’t been easy but I’ve learned a lot.

Photo by Logan Nolin on Unsplash

Migraine Update // Muscle Relaxers & Anxiety

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Last month I went to my Neurologist appointment not really knowing what to expect. I wanted something to change but I wasn’t sure what to do.

It was extremely weird going into the appointment since I had to fill out extra forms and be temperature checked at the door. I wore my mask the whole time and felt safe but it was a much different environment than I’m used to.

Overall the appointment was really good. I do like my Neurologist and feel like he listens to my concerns and answers my list of questions that I always bring with me. He isn’t pushy and I really appreciate that since I had such a bad experience with my previous Neurologist.

We decided to take a bit of a different route this time around and try a muscle relaxer in addition to my normal preventative medication. The muscle relaxer is supposed to help relieve tension and can be especially helpful for people suffering from tension headaches. I had never considered taking a muscle relaxer for my migraines but my Neurologist was really informative and I decided to try them.

It’s been about a month and I have mixed feelings. I sleep so well when I take the muscle relaxer at night but I almost sleep too well. I feel like I’m in a coma and just pass out and then have a hard time waking up with my alarm. I also feel pretty groggy the next morning which isn’t great for working.

Lack of sleep is a huge trigger for my migraines though so sleeping this well is also great. I get more sleep than I used to when I take them. I haven’t really noticed a decrease in migraines but I think it is a little helpful to take the muscle relaxer.

I’ve also had an increase in anxiety over the last month. I have a small tremor in my hands that I take medicine for. I was so stressed out and anxious last week that my small tremor turned into a full blown episode where I was shaking so bad I couldn’t hold a drink. My mom thinks this was brought on by stress and I took a video to show my Neurologist at my next appointment.

Since my increased tremor last week, which thankfully lessened after a few hours of rest, I have been trying to take it super easy. My body obviously isn’t responding well to stress and I need to keep that in mind and stop pushing myself so hard.

I also had a level 10 migraine last weekend. I haven’t had one that bad in so long and I barely made the car ride home from my sister in law’s house. I laid on the bathroom floor for awhile before Brett helped me to bed. I think the trigger was a small glass of wine that my SIL gave me. I know I shouldn’t drink wine but I thought it wouldn’t hurt me that much.

I have a lot of notes for my next Neurologist appointment but I still feel hopeful. I have the option to do the Amiovig injections so that might just be my next path.

There’s a lot of trial and error when it comes to finding the right treatment plan for migraines. I try to open to trying new things and I just remain hopeful that one day something will work!

As always, if you are suffering from migraines just know that you are not alone. There are millions of people suffering in America alone and I’m just trying to share my story and advocate.

Thanks for reading!

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Keto for Migraine: 1 Month Update

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I have heard SO many negative comments about the Ketogenic diet and I completely understand. For your normal everyday person a low-carb lifestyle might not doctor recommended. The Keto diet was created for people with Epilepsy and works well for other Neurological conditions. I have chronic migraines and there is no “cure”. I was told that Keto may lessen my symptoms and it sounded better than trying another medication.

One month ago I started following the Ketogenic diet. This is my third attempt and I was really successful on my first two so I went in very hopeful. My other two attempts were more for weight loss so I didn’t track my migraines as much as I should have. This time I’m trying to only focus on my headaches and migraines.

How were my migraines this past month?

I actually had a really great month overall! I caught a nasty cold but I didn’t let that stop me from following the meal plan that I had created. There was no guarantee that Keto would help me but I’m happy to report that I am feeling better! I’ve known for the past couple of years that sugar is a trigger for me so it makes sense that not eating sugar would have a big impact on my overall health. I basically cut my migraine days in half so far!

One of the hardest parts of chronic migraine for me is rebound headaches which are also called medication overuse headaches. I couldn’t beat my headache cycle so I started taking ibuprofen or another type of over the counter pain medication every day to get me through. This constant use of medicine started causing rebound headaches and I ended up in a never-ending headache. By eliminating my triggers I am hoping to be able to end this vicious headache cycle.

Have I lost any weight?

Yes, I’ve lost a little over 10 pounds in a month. In reality I’d like to lose 30 more to be at my “normal” healthy weight. I wrote my weight gain story here if you’d like to understand more about why I say my “normal” weight. Most of the weight loss at the beginning of Keto is just water weight and I’m really not concerned about losing weight at this point. I am tracking it in my migraine journal but it’s not my main goal right now.

Has Keto been hard? 

Not really! I have found myself reading my cookbooks and looking forward to grocery shopping and meal prep. I’m learning new recipes and I feel more confident than ever in the kitchen. My overall mood has improved so much and I think a lot of it has to do with Keto.

My sugar cravings went away after about two weeks. I don’t feel deprived of anything though! I eat a square of my favorite dark chocolate after dinner and that keeps the sugar cravings away. I’ve also found substitutes for my favorite snacks like salt and vinegar almonds instead of chips.

Let me know if you have any questions about Keto! I am not a doctor so please ask yours before you start any new “diet” program. I hate calling this a diet and I only feel the need to share how I am doing for others with migraines who may find this helpful.

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Photo by Brooke Lark on Unsplash

 

Migraine Update: Elimination Diet & New Meds

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Everyday I’m worried about when I will have my next migraine. I always have pain medication on hand and an excuse at the tip of my tongue to leave early. I avoid making plans outside of work and family obligations because I never know how I will feel on that day. I’ve let my fear of pain control my life for years and the anxiety that comes along with this fear holds me back from doing what I love to do.

My migraines are genetic and I can go on and on about all of the reasons why I may never be completely pain free. My current neurologist is a headache specialist. He’s a great guy who wants to help me live my best life. But he doesn’t have all the answers. He’s willing to try new things in hopes of them working but a lot of it is up to me.

It was up to me to realize that I was taking too much ibuprofen. It was up to me to realize that I wasn’t fueling my body properly. It was up to me to realize that I was feeling sorry for myself and needed to change.

Last summer I read Grain Brain by David Perlmutter which was recommended to me by my physical therapist. I learned about gluten, carbs, and sugar and how they interact with our brains. I wanted to try an elimination diet but it seemed like too much work at the time.

This summer I’m willing to do anything it takes to live a pain-free life. I’ve changed my lifestyle to balance the amount of gluten, carbs, and sugars I am eating. I’ve made my health a priority.

It never feels like enough though. I’m on day 3 of a debilitating migraine right now. I’ve had to leave work early and sit in the dark with ice packs for hours at a time. I’ve had to miss meetings and time with my family. I’ve been angry at my messed up brain for constantly hurting. I’ve told myself that I’m a terrible employee and co-worker because I can’t stand being in the office when I feel like this.

I’m also having trouble sleeping again. I can stay up pretty much all night and have gotten used to functioning on very few hours of sleep. I feel like a zombie.My neurologist prescribed me a medication to help me sleep since I was going days without sleeping for more then a couple of hours. He also prescribed me a pain medication for when I have migraines.

I didn’t like the sleeping pills. I was dead asleep within an hour on the couch. Brett had to help me get to bed. I don’t like not knowing what’s going on and feeling helpless. The pain medication didn’t help and I don’t plan on taking it again. I ended up being sick to my stomach while on it.

I’ve felt pretty angry about my migraine situation lately but I’m trying to do my best to take care of myself. Whatever that means. I went 5 days without a migraine when I first started the elimination diet which is a long period of time for me.

Hopefully I will have a positive migraine update for you soon!

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Five on Friday #11

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Hooray! We made it to Friday! This was my first week back to work after vacation and I’m exhausted.

  1. Fourth of July is next weeks which means that it’s our biggest airshow week of the season. I’m exhausted just thinking about it! The fourth was always my favorite growing up because both sides of my family would get together to celebrate America and my sister’s birthdays. I loved having everyone together at the lake.
  2. We went to Oregon last week on vacation with my friend, Anna Sophie, and her boyfriend. You might remember her from my study abroad posts. We hadn’t seen each other since leaving London in 2015 so it was so nice to catch up! I’m hoping to write a whole post about our trip soon.
  3. Before vacation I was really motivated on my health and fitness journey. My goal is to not only lose weight but to accept my body at every stage along the way. I’ve spent the past couple of years being really terrible to myself with the way I talk about and treat my body and I know that needs to stop. Body image is a huge issue in our current culture and I’ve really had to step back from social media in order to get my head back in a good place.
  4. Going on vacation has really made me realize that I need to spend more time away from work. My work-life balance has gotten much better since last year but I still worry and think about work way too much. I need to step back every once in a while and just worry about me.
  5. I had a neurologist appointment on Monday afternoon and I’m thinking about doing a Migraine update post to share what’s been going on. I haven’t done an update post in awhile because there hasn’t been any updates.

Do you have any plans for this weekend?

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Photo by Link Hoang on Unsplash

6 Migraine Essentials

Migraine Essentials

I never thought that I would be blogging about my migraines.  I started getting them when I was young and I felt really alone in my struggle but since I started blogging I’ve found so many who can relate to my story. I hate that there are so many men and women struggling with migraines but it does help me to know that I’m not alone and there are a few things that can help.

Over the years I have come up with a list of essentials that I use when I have a migraine or in order to prevent migraines. My number one tip is to always stay hydrated. Everyone has their own migraines triggers but dehydration seems to be a very common one. I drink a ton of water everyday in order to make sure that I am hydrated. Being hydrated is the number one rule for me for my migraine prevention.

Here are six essentials that I have found work for me when I have a migraine.

  1. Headache Hat – This is basically an ice pack that wraps around your head and has velcro straps so that you can adjust the pressure. Basically it’s the best invention ever. You can buy one on Amazon for $40 and it’s worth every penny. I am also known to tie ice packs around my head with a scarf. It’s not the best look but it works!
  2. Electrolyte water or supplement – Like I said, hydration is key. But when I get a migraine I don’t want to do anything and that includes drinking water. I always keep a big bottle of electrolyte water in the fridge along with a Gatorade so that I can quickly hydrate during a migraine. You can also buy electrolyte packets to add to normal water.
  3. Blackout curtains – I am very sensitive to light on a normal day to day basis. When I have a migraine my sensitivity is even worse. We have blackout curtains in our bedroom so that no matter what time of day it is I can curl up in bed and try to rest. I also sleep on the couch in the basement when I’m in a lot of pain because it’s dark, cold, comfy, and quiet.
  4. Caffeine – This is a tricky one and can kind of work differently for everyone. I don’t drink coffee and the tea I do drink has very little caffeine. When I have a migraine I like to grab a coke/pepsi for a quick dose of caffeine. I have found the Excedrin Migraine doesn’t work for me and this method does.
  5. Ice roller – My neck tends to get really stiff during a migraine. I had physical therapy for my migraines so I know a few stretches that can help. But what helps more is having this ice roller ready to go in the freezer to roll over my neck and forehead. It feels so nice!
  6. Comfy Clothes – This sounds ridiculous but when I have a migraine I am looking for something to provide comfort. Putting on my favorite pair of pajamas or sweatpants automatically makes me feel better. Comfy clothes don’t make the pain go away but they make it feel more bearable than being in pain and wearing jeans, for example.

What are your migraine essentials?

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Photo by Annie Spratt on Unsplash

2019: First Quarter Goals

2019 Goals. New Years Resolutions. 2019 1st Quarter Goals

The time is finally here to start planning my goals for 2019. The past year flew by and I’m not sad to see it go. January always feels like a fresh start and this year I could really use a clean slate.

My goals for the first three months of 2019 are below and I encourage you to set goals for yourself too! I’ve said it before and I’ll say it again; setting quarterly goals instead of annual ones has been a game changer for me! I started setting quarterly goals at the end of 2017 and continued through all of 2018. I actually found myself looking back on my goals more often and completing them!

  1. Get a professional haircut. It’s incredibly sad that this is my first goal but the truth is that I HATE getting my hair cut. The whole process takes way too long and I’m rarely 100% satisfied with the results. I have super thick, wavy hair and most hairstylists don’t seem to know how to handle it. I like to joke that my hair is allergic to water because the second it gets wet it goes crazy and refuses to untangle. I have tried every product imaginable to tame the beast but I’ve summed it up to be #thickhairproblems. Do you have any hair products that you swear by?
  2. Travel at least twice. After our trip to Europe in October I was exhausted and traveling was the last thing I wanted to do. But Brett loves to travel and deep down I do too. I don’t want my love of adventures to be another thing my headaches take away from me. Brett and I want to take at least two small trips during Q1 including a trip to Florida to visit his Grandpa. The other trip will likely be a super spontaneous weekend trip so stayed tuned for the details!
  3. Commit to the blog. I have said this over and over before but have never stuck to it. I love blogging and in 2019 I want to focus more on doing the things that I love. Over the past 5 years the blogging community has embraced me and this has become my safe place away from everything else. I want 2019 to be the best year ever for Life of Hayley!
  4. Read three books and write reviews. One of the best things that 2018 brought me was my love of books. So far I have partially read two books that I am loving. I enjoy writing book reviews so hopefully I will find three books that I love to review!
  5. Meal plan and prep for the week ahead. I’ll admit that I haven’t cooked a real meal in a long time. My Crock pot and I became really good friends in 2018 because I had no energy or desire to cook. I’m kinda sick of the standard Crock pot meals though and am ready to start eating healthier and meal planning. Before our wedding in 2017 I was the Queen of meal prep. I’m hoping to at least get to Princess level in 2019.
  6. Make healthy living a top priority. I almost titled this goal as “making weight loss a priority” but then I re-evaluated my mind-set. This goal isn’t all about the number on the scale. I know that I need to lose weight but I also know my negative relationship with my body image. For me, the focus has to be on eating healthier and exercising and not the number on the scale.

In addition to setting quarterly goals I also wanted to choose a word to capture my goals for 2019. It took me longer than I care to admit to find a word that completely covers everything that I want to accomplish this year.

The word I picked is confidence.

Confidence in my ability to fight the demons that I am facing. Confidence in myself to be the best person that I can be. Confidence in my body as I look in the mirror everyday. Confidence as I stand in front of my co-workers with the knowledge that I can do my job well. Confidence that I am moving in the right direction.

Confidence in me.

What are your goals for 2019? Let me know below.

Thanks for reading!

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My Migraine Story

 

Chronic Migraines, Chronic Headaches, My Migraine Story, Migraine Treatments

Hey, hey.

It’s me, back with one of the most personal posts I have ever shared on the internet.

It’s no secret that I have been living with daily headaches and chronic migraines. I have often shared my struggles with balancing life and work with the constant pain. I still don’t have any answers and I may never receive them but I thought I’d share my story because I know that I am not the only one struggling.

I can remember having headaches as a pre-teen but they never lasted that long. My junior year in high school was when my headaches started to become a routine problem but I was able to take an ibprofen and be fine to go about my day.

My mom, sister, and I got into a car accident that same year. My head went through the passenger side window and I still can’t remember the accident. I have a brief memory of waking up in the ambulance but I mostly just remember waking up at the hospital.

After the car accident, I continued to have headaches but they started to get a little stronger. I also started to get migraines that made me sick to my stomach. Senior year was when they became an almost constant problem. My eyesight started getting blurry and it was painful to wake up in the morning. My brain felt like it was pressing up against my skull at all times.

College was when I started to see a neurologist. My headaches had become constant and I was getting migraines a couple of times per month. I was living in the noisy dorms and trying to balance 5 classes, a part-time job, and a minimal social life. It was not how I imagined college to be. For the first time, I was prescribed something for the pain. We discovered early on that I have a bad reaction to most of the commonly used medicines for headache pain. My stomach could not seem to handle it.

I went to London and hoped for the best. My headaches followed me and I spent more time then I want to admit in bed with the blankets covering my eyes. I had to say no to experiences with my friends and missed many of our lunch time adventures. I vowed to make a change when I got home. I didn’t want to keep missing out on things due to my headaches.

Not much changed when I got home and I can’t exactly pinpoint the moment where my headaches started to rule over me. I needed to take ibprofen three times a day in order to function. My head hurt the worst in the morning when I first woke up and at night when I was trying to sleep. The pain would wake me up from a deep sleep. I started to become dependent on ibprofen because it was the only thing that made me feel normal, if only for a few hours.

Now I understand that my constant intake of ibprofen actually began to cause rebound headaches. My body became dependent on it and it made my headaches even worse. I actually felt like I couldn’t function without it. But what was I to do? I was a full time student and almost full time employee at a job where I couldn’t just call off work if I didn’t feel well. It was a never ending cycle.

I graduated in April 2016 and began looking for a full time job in my field. I spent a lot of time in bed in between working and applying for jobs. I was exhausted and didn’t take care of myself. I stopped taking the preventative medicine that my doctor had given to me because it wasn’t working and I felt hopeless.

Fast forward to me accepting my current position and being thrown into a field that I I knew very little about. I thought that college had prepared me for a corporate job but I was very wrong and very out of my element. I was depressed and sick. I started seeing my neurologist again and we discussed the lifestyle changes that I would need to make in order to start feeling better.

It’s been a year and a half and very little progress has been made. I have a headache every single day and am almost constantly nauseous. I struggled a lot in the beginning of my career because the pain made me feel really self conscious and I didn’t want my new co-workers to know my problems. But now they know and understand that sometimes I need to sit in my corner quietly and just work. I try to miss as few days as possible at work but my boss is very understanding if I need to take a break.

So, that’s where I am at. Many years and no answers. I should mention that my mom and grandma both have these headaches so the doctors know that it is genetic. I am also consulting a neurologist when taking medications. It is very important to speak to a medical professional when taking any sort of medication.

I am trying to stay hopeful that my neurologist will find something to help me. At my last visit we discussed trying physical and massage therapy.  I start physical therapy this week and am super hopeful that it will help! And now you know that if I ever go a long time without blogging it is most likely due to having a bad headache week.

Let me know if you have any recommendations! I might write a post on all my tips and tricks for dealing with headaches or migraines.

Thanks so much for reading!

Lifestyle Blog, Life of Hayley

 

Image via Unsplash

2018: Second Quarter Goals

2018 Second Quarter Goals
Hello there!

I didn’t think this post was going to happen but here we are. What’s new with you? Are you crushing your 2018 goals?

I am back with another quarterly goal list and I just wanted to mention how first quarter went for me.

The first three months of 2018 went by so quickly. January was a blur of excitement, anxiety, and many, many tears. February featured the birth of my co-worker’s baby which means three months of maternity leave for her. In other words, I am swamped at work but thriving. I am learning every day and my team is simply amazing. March feels like it didn’t even happen. March meant long hours, lots of meals at my desk, and an overflowing calendar. In other words, tax season. It’s been a rough three months but I am grateful every day for the opportunities that have been thrown my way.

We are almost one month down for the first quarter. I still can’t believe how fast this year is going! Can time just please slow down a bit?!

So, here are a few of the things I am hoping to accomplish during what is left of the second quarter.

  1. Create healthy habits. What does a healthy lifestyle look like for me? I am still trying to figure this out but I will not stop until I have the answers that I am looking for. I don’t like what I see in the mirror and I am going to change that. Baby steps are needed but little by little I will get to where I want to be.
  2. Family First. My grandparents are back from Arizona which means that summer is right around the corner. I want to spend as much time as I can with my family. I want to go camping, spend days at the lake, and just enjoy as much time as I can with the people that I love most.
  3. Make our house a home. If you didn’t read my last post, Brett and I bought a house and moved in last month! We are so excited to decorate and really turn this house into our own home. We have dreamed of this for so long and still can’t believe that this is our reality. This is the beginning of another chapter in our story.
  4. Me Time. I find myself putting other people first a lot of the time. I often forget to take care of myself. I want to find time to do things that help myself like get a haircut and buy some clothes that will flatter my new, curvier figure. I have spent so much time the last couple of months being really negative about my body so I need to spend some time on making myself better from the inside out.
  5. Blogging. Is this still a thing? Does Life of Hayley even exist or matter? It’s time to figure it out. Maybe I will never be full time writer or have the most pin worthy posts but sharing pieces of my story impacts my life is a positive way. I need to figure out a way to make this blog work. Any suggestions would be greatly appreciated! 🙂
  6. Get my head in the game. A huge thing that is holding me back is my health. I mentioned in a recent post that my headaches and migraines have been getting worse. It’s miserable. I have an appointment with my neurologist in mid May. I am hoping to discuss some next steps with him that could improve my quality of life. Right now I feel like I am just trying to make it through each day in one piece.

Wow, I had a lot to say. I sometimes forget how much I love having an outlet for all of these thoughts that usually just bounce around in my head.

I would love to hear from you so please comment below with questions, words of encouragement, or just a simple “hello”. I love to hear from you.

As always, thank you so much for reading. Hopefully I will be back soon with more. 🙂

 

Lifestyle Blog, Life of Hayley