Migraine Update: Decision Time & Leaving my Neurologist

Chronic Headaches and Migraine
Hey, friends!

I finally had a Neurologist appointment last week after being discharged from PT almost a month ago. I thought about writing this after my appointment but I just felt so discouraged that I cried in my car before forcing myself back to work.

Basically, my Neurologist didn’t even read my discharge papers and wanted to put me back on the same medicine I was on before. I put my foot down and told him no because I was on it for YEARS with very minimal results. He was in such a hurry to move onto his next appointment that he didn’t even listen to what I was saying. He prescribed an anti-seizure medication that is¬†crazy expensive.

I am managing just fine right now without any medication. I still have a headache every single day and migraines a few times a month. I really want to try out acupuncture or a chiropractor before trying the prescribed medicine.

I think I have made a big decision though. I don’t want to see this Neurologist anymore. I don’t know if this means seeing another Neurologist or finding a headache specialist somewhere else. All I know is that I can’t justify spending $200 per visit to talk to a brick wall anymore.

My old physical therapist called me on Friday to recommend a book called Grain Brian which apparently goes into how gluten and sugar work with our brains. I ordered it on Amazon and am looking forward to reading it. I really do not want to give up Gluten though.

I want to spend some more time researching before I decide what my next steps should be. Here’s the list of what I am researching:

  • Acupuncture
  • Chiropractor
  • Elimination diet (gluten, dairy, etc)
  • Botox

Things I’ve already tried:

  • Massage Therapy (will do again)
  • Physical Therapy
  • Preventative/Abortive Medications
  • OTC Medications
  • Basic elimination diet (cheese, red wine, etc)
  • Trigger Identification

For now I am just taking it one day at a time and trying to remain positive ūüôā I think things will be much better once I ditch my current Neurologist and find someone who will actually listen and try to help me.

As always, thanks so much for all your support and feedback! I have loved reading your suggestions and have a running list of things to try based on blog comments.

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Migraine Update: Discharged From PT

physical therapy, migraine awareness month, chronic migraine headaches, treatme

Hey, friends!

I took a sick day today for a migraine and slept on and off all morning and afternoon. If you read my Migraine Story you know that my Neurologist recommended physical therapy and weaned me off of the preventative medicine that I’ve been on for years.

Well, my headaches have been terrible since weaning off of my medicine. I have had to take ibuprofen four times per day in order to dull the pain enough to go to work. My long-term goal is to not need to take any pain medication unless I have a migraine because it’s extremely bad for my body.

So I’ve had this migraine for about four days now and haven’t taken any medication in 30 ish hours. The reason I’m not taking anything for my migraine is because I know that I’m having rebound headaches which are caused by overusing medication. I need to get to the root problem which means stopping any rebound headaches.

Today was also a scheduled physical therapy day for me which I did not want to cancel. I went to PT expecting to do the stretches I have been practicing and maybe learning some new ones. My physical therapist is awesome but she knew that our appointments were not helping me reach my goal of being pain-free.

I didn’t expect to be discharged today. I didn’t expect to cry over being discharged. I didn’t expect to feel a wave of hopelessness when she told me that she didn’t think she could help.

I did feel like she heard me and believed me. I felt like she wanted to help me find an answer. She empowered me to not take “no” for an answer from my neurologist and doctors.

She will be sending a note over to my neurologist with her treatment recommendations which include a pain clinic or headache institute in either Ann Arbor or Chicago. I am doing my research and will talk to my family and doctors about the next steps. I’m sad that another door has been closed but I am hopeful that another will open very soon. My physical therapist reminded me that on the outside I look healthy but I need to remind people that I’m still suffering.

I did take away one important thing from physical therapy that I wanted to share with everyone. I know that I am extremly lucky to not have a brain tumor or a terminal disaese. But just because I can’t be “diganosed” doesn’t mean that I’m not still fighting for my life. Every day I am fighting for a quality of life that doesn’t involve constant pain, sleepless nights, and bottles of medication. I am fighting for a life where Brett and I can start a family which is currenly not an option. I am fighting to travel and spend a day at the lake with my family like a normal twenty-something.

I’m not asking for a miracle. I’m just asking to feel okay again.

June is migraine awarness month. Hopefully me sharing my story can help others who are suffering the same fate that I am. I’m not alone in this and I won’t stop fighting for myself and everyone else who is impacted.

I’ve ordered some books and will be spending the next few weeks researching my next steps. Let me know if you like these updates and want to stay informed on my treatment options!

Thanks so much for reading!

 
Lifestyle Blog, Life of Hayley

 
Photo by Imani Clovis on Unsplash

I will survive

Migraines, headache, survival

 

Hey there. Long time, no blog.

“Where have I been?” you ask?

The main reason I took a random leave of absence from the blogging world was my health. I have mentioned before that I have struggled with migraines for the last several years. During the month of December I had three blissful weeks without a migraine. But once January started my migraines were back and were the strongest they have ever been. I felt like I was barely functioning.

I had a good visit with my Neurologist at the beginning of February. Unfortunately, there’s not much more he can do. I will be getting another MRI done in the near future just to make sure that nothing has changed since my last one. My doctor also prescribed another medicine that I could take up to 7 times per month. I ended up not picking this prescription up because a.) the side effects are terrible (I have taken it before) and b.) it was almost $120 for 7 pills.

Other events have also played into my break. I did check one super exciting thing off of my 1st quarter goals which I will be sure to share soon! I am a bit behind on my 2nd quarter goals but hopefully they will be up soon too.

This post was mostly to let you guys know that I’m still here and I still care about my little piece of the internet. I’m just struggling with things that I can’t control. Hopefully my regularly scheduled content will be back soon.

Thanks for reading!

 

Lifestyle Blog, Life of Hayley

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

2018: First Quarter Goals

2018 First Quarter Goals

Hello again!

I am back with my goals for the first quarter of 2018! I like the idea of New Years resolutions. However, I have a hard time sticking to them because 365 days seems like a long time. I eventually forget my goals and by December I haven’t really accomplished anything.

That’s why I love setting quarterly goals. So much of what I do at work revolves around quarters so I have an easy time thinking this way. It’s a great way to break the year up into four manageable sections.

With that said, here are a few things that I am hoping to accomplish over the next couple of months:

  1. Pay Off One Credit Card. Brett and¬†I are super lucky because I have no credit card debt and Brett has very little. We have been reading Dave Ramsey’s Total Money Makeover and it has given us the inspiration to start small and pay off our lowest balance credit card. I would love to go into 2019 with no credit card debt!
  2. Start House Hunting. I LOVE renting but the finance lover in me hates throwing our money away on something we don’t own. Brett and I sat down with a realtor this week and agreed to start taking baby steps towards purchasing our first home. We will start to look at houses in our price range and figure out what we like and dislike. We will shop around for different home loan¬†lenders and find the best fit for us. We will not feel pressured into buying a house. We will buy when we are ready.
  3. Continue to make my health a priority. Guys, I have struggled for YEARS with migraines and daily headaches. I went almost two years with a constant headache and the pain has been debilitating. I made it a goal last quarter to really work with my Neurologist to find a solution that will work for me and my liver. The past month has been amazing. I still have headaches and the occasional migraine but the pain is finally manageable. I know I still have a long road ahead of me but this is the first time since 2011 that I have felt this good. *Knocks on wood*
  4. Being more productive after work. I am always exhausted after work. My days are stressful and I never feel like cooking or cleaning after work. I have made it my goal to meal plan and prep in order to make work nights easier. I will try to always go to bed with a clean kitchen, my lunch packed, and my outfit prepared for the next day.
  5. Focus on Healthy Living. I have gained a lot of weight¬†since the wedding. I stopped eating healthy and working out. It was nice not to have to worry about fitting in an expensive wedding dress or looking good in pictures but it’s gotten bad. I am having a hard time looking in the mirror, fitting into my clothes, and having positive thoughts about myself. I just want to start eating healthier, walking more, and drinking more water. I don’t want to doing any extreme fad diet because they are bad for my mental health. I just want to respect my body again.
  6. Finish Our Wedding Thank You Notes. I am such a slacker and I hate myself for it. Writing all of these thank you notes stress me out. I am so grateful for everyone who helped us decorate, drive shuttle cars, and clean up after the wedding. I am thankful for everyone who brought us gifts or gave us money. It’s just so hard for me to convey how grateful I am in a note.

So there’s a few things that I am working on in the beginning of 2018. Financial freedom, healthy living, and future planning. It’s going to be a great year!

What are your goals for 2018?

Thanks for reading!

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