Migraine Update: New Neurologist & New Preventatives

Migraine Update - Chronic Migraines and Headaches - Trokendi XR

Hey friends!

After my last update about feeling discouraged in my migraine journey I have finally found a new source of hope, a new Neurologist! This Neurologist has his own practice separate from the hospitals. I can’t tell you how refreshing it is to be seen by a small practice instead of a hospital. I have seen this new Neurologist a couple of times now and he listens to what I have to say and is open to trying different treatment ideas when others fail. 

During my initial consultation I explained to him how frustrated and hopeless I was feeling because of my migraines and headaches. I always cry when I’m explaining how I’m feeling because I just feel so depressed about the situation. I think he could tell how desperate I was for a solution and started coming up with a treatment plan right away.

He prescribed Trokendi XR which is an extended release version of Topamax, an anti-seizure medication. I want to do a full post about my experiences on Trokendi at some point but the short and sweet version is that I spent the next six weeks or so pretty miserable. Trokendi can be a lifesaver for many people with migraines and I was really hoping that it would work for me. Unfortunately, it also has nasty side effects that left me feeling worse than normal. 

I went back yesterday afternoon to see my Neurologist to discuss Trokendi and my next steps. After explaining to him just one of the many side effects he immediately decided it was time to wean me off. I was so anxious to visit him yesterday because I so badly wanted to stop taking Trokendi but my old Neurologist would have wanted me to keep trying. This new Neurologist listened to how miserable I was feeling and decided to try something else. I honestly think my old Neurologist scared me away from doctors and now I have this fear of telling them how I feel. 

The new plan is to try a beta blocker and a round of steroids to break this headache cycle that I’ve had for almost a year. I also have to wean off of Trokendi too. I’m a little nervous to start the steroids but I’ve read that they can be miracle workers for people suffering from rebound headaches. 

I’m feeling hopeful because this new Neurologist is willing to try new things to lead me towards a pain free lifestyle. He listens to what I am saying and how I’m feeling and never rushes through my appointments. If I have questions I can always call his office between appointments and talk to him. It’s been a whirlwind to get here but I think I am at least headed it the right direction now. 

The hilarious part is that the other hospital in my area is finally willing to take me as a patient and has graciously booked me an appointment for January. I’m planning on cancelling. I think I need to be done with hospitals for awhile. 

What I’ve learned through this whole process is that sometimes you just have to learn to be your own advocate. I’ve been fighting for a pain free quality of life for eight years so far and I will continue to do so for as long as it takes. This journey isn’t easy and it will never be easy. It’s going to be painful, annoying, and depressing but the goal is to one day be able to travel and have a family with Brett. To me, that goal is worth it. 

Thanks so much for reading!

Photo by rawpixel on Unsplash

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My Migraine Story

 

Chronic Migraines, Chronic Headaches, My Migraine Story, Migraine Treatments

Hey, hey.

It’s me, back with one of the most personal posts I have ever shared on the internet.

It’s no secret that I have been living with daily headaches and chronic migraines. I have often shared my struggles with balancing life and work with the constant pain. I still don’t have any answers and I may never receive them but I thought I’d share my story because I know that I am not the only one struggling.

I can remember having headaches as a pre-teen but they never lasted that long. My junior year in high school was when my headaches started to become a routine problem but I was able to take an ibprofen and be fine to go about my day.

My mom, sister, and I got into a car accident that same year. My head went through the passenger side window and I still can’t remember the accident. I have a brief memory of waking up in the ambulance but I mostly just remember waking up at the hospital.

After the car accident, I continued to have headaches but they started to get a little stronger. I also started to get migraines that made me sick to my stomach. Senior year was when they became an almost constant problem. My eyesight started getting blurry and it was painful to wake up in the morning. My brain felt like it was pressing up against my skull at all times.

College was when I started to see a neurologist. My headaches had become constant and I was getting migraines a couple of times per month. I was living in the noisy dorms and trying to balance 5 classes, a part-time job, and a minimal social life. It was not how I imagined college to be. For the first time, I was prescribed something for the pain. We discovered early on that I have a bad reaction to most of the commonly used medicines for headache pain. My stomach could not seem to handle it.

I went to London and hoped for the best. My headaches followed me and I spent more time then I want to admit in bed with the blankets covering my eyes. I had to say no to experiences with my friends and missed many of our lunch time adventures. I vowed to make a change when I got home. I didn’t want to keep missing out on things due to my headaches.

Not much changed when I got home and I can’t exactly pinpoint the moment where my headaches started to rule over me. I needed to take ibprofen three times a day in order to function. My head hurt the worst in the morning when I first woke up and at night when I was trying to sleep. The pain would wake me up from a deep sleep. I started to become dependent on ibprofen because it was the only thing that made me feel normal, if only for a few hours.

Now I understand that my constant intake of ibprofen actually began to cause rebound headaches. My body became dependent on it and it made my headaches even worse. I actually felt like I couldn’t function without it. But what was I to do? I was a full time student and almost full time employee at a job where I couldn’t just call off work if I didn’t feel well. It was a never ending cycle.

I graduated in April 2016 and began looking for a full time job in my field. I spent a lot of time in bed in between working and applying for jobs. I was exhausted and didn’t take care of myself. I stopped taking the preventative medicine that my doctor had given to me because it wasn’t working and I felt hopeless.

Fast forward to me accepting my current position and being thrown into a field that I I knew very little about. I thought that college had prepared me for a corporate job but I was very wrong and very out of my element. I was depressed and sick. I started seeing my neurologist again and we discussed the lifestyle changes that I would need to make in order to start feeling better.

It’s been a year and a half and very little progress has been made. I have a headache every single day and am almost constantly nauseous. I struggled a lot in the beginning of my career because the pain made me feel really self conscious and I didn’t want my new co-workers to know my problems. But now they know and understand that sometimes I need to sit in my corner quietly and just work. I try to miss as few days as possible at work but my boss is very understanding if I need to take a break.

So, that’s where I am at. Many years and no answers. I should mention that my mom and grandma both have these headaches so the doctors know that it is genetic. I am also consulting a neurologist when taking medications. It is very important to speak to a medical professional when taking any sort of medication.

I am trying to stay hopeful that my neurologist will find something to help me. At my last visit we discussed trying physical and massage therapy.  I start physical therapy this week and am super hopeful that it will help! And now you know that if I ever go a long time without blogging it is most likely due to having a bad headache week.

Let me know if you have any recommendations! I might write a post on all my tips and tricks for dealing with headaches or migraines.

Thanks so much for reading!

Lifestyle Blog, Life of Hayley

 

Image via Unsplash

2018: Second Quarter Goals

2018 Second Quarter Goals
Hello there!

I didn’t think this post was going to happen but here we are. What’s new with you? Are you crushing your 2018 goals?

I am back with another quarterly goal list and I just wanted to mention how first quarter went for me.

The first three months of 2018 went by so quickly. January was a blur of excitement, anxiety, and many, many tears. February featured the birth of my co-worker’s baby which means three months of maternity leave for her. In other words, I am swamped at work but thriving. I am learning every day and my team is simply amazing. March feels like it didn’t even happen. March meant long hours, lots of meals at my desk, and an overflowing calendar. In other words, tax season. It’s been a rough three months but I am grateful every day for the opportunities that have been thrown my way.

We are almost one month down for the first quarter. I still can’t believe how fast this year is going! Can time just please slow down a bit?!

So, here are a few of the things I am hoping to accomplish during what is left of the second quarter.

  1. Create healthy habits. What does a healthy lifestyle look like for me? I am still trying to figure this out but I will not stop until I have the answers that I am looking for. I don’t like what I see in the mirror and I am going to change that. Baby steps are needed but little by little I will get to where I want to be.
  2. Family First. My grandparents are back from Arizona which means that summer is right around the corner. I want to spend as much time as I can with my family. I want to go camping, spend days at the lake, and just enjoy as much time as I can with the people that I love most.
  3. Make our house a home. If you didn’t read my last post, Brett and I bought a house and moved in last month! We are so excited to decorate and really turn this house into our own home. We have dreamed of this for so long and still can’t believe that this is our reality. This is the beginning of another chapter in our story.
  4. Me Time. I find myself putting other people first a lot of the time. I often forget to take care of myself. I want to find time to do things that help myself like get a haircut and buy some clothes that will flatter my new, curvier figure. I have spent so much time the last couple of months being really negative about my body so I need to spend some time on making myself better from the inside out.
  5. Blogging. Is this still a thing? Does Life of Hayley even exist or matter? It’s time to figure it out. Maybe I will never be full time writer or have the most pin worthy posts but sharing pieces of my story impacts my life is a positive way. I need to figure out a way to make this blog work. Any suggestions would be greatly appreciated! 🙂
  6. Get my head in the game. A huge thing that is holding me back is my health. I mentioned in a recent post that my headaches and migraines have been getting worse. It’s miserable. I have an appointment with my neurologist in mid May. I am hoping to discuss some next steps with him that could improve my quality of life. Right now I feel like I am just trying to make it through each day in one piece.

Wow, I had a lot to say. I sometimes forget how much I love having an outlet for all of these thoughts that usually just bounce around in my head.

I would love to hear from you so please comment below with questions, words of encouragement, or just a simple “hello”. I love to hear from you.

As always, thank you so much for reading. Hopefully I will be back soon with more. 🙂

 

Lifestyle Blog, Life of Hayley

I will survive

Migraines, headache, survival

 

Hey there. Long time, no blog.

“Where have I been?” you ask?

The main reason I took a random leave of absence from the blogging world was my health. I have mentioned before that I have struggled with migraines for the last several years. During the month of December I had three blissful weeks without a migraine. But once January started my migraines were back and were the strongest they have ever been. I felt like I was barely functioning.

I had a good visit with my Neurologist at the beginning of February. Unfortunately, there’s not much more he can do. I will be getting another MRI done in the near future just to make sure that nothing has changed since my last one. My doctor also prescribed another medicine that I could take up to 7 times per month. I ended up not picking this prescription up because a.) the side effects are terrible (I have taken it before) and b.) it was almost $120 for 7 pills.

Other events have also played into my break. I did check one super exciting thing off of my 1st quarter goals which I will be sure to share soon! I am a bit behind on my 2nd quarter goals but hopefully they will be up soon too.

This post was mostly to let you guys know that I’m still here and I still care about my little piece of the internet. I’m just struggling with things that I can’t control. Hopefully my regularly scheduled content will be back soon.

Thanks for reading!

 

Lifestyle Blog, Life of Hayley

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

2018: First Quarter Goals

2018 First Quarter Goals

Hello again!

I am back with my goals for the first quarter of 2018! I like the idea of New Years resolutions. However, I have a hard time sticking to them because 365 days seems like a long time. I eventually forget my goals and by December I haven’t really accomplished anything.

That’s why I love setting quarterly goals. So much of what I do at work revolves around quarters so I have an easy time thinking this way. It’s a great way to break the year up into four manageable sections.

With that said, here are a few things that I am hoping to accomplish over the next couple of months:

  1. Pay Off One Credit Card. Brett and I are super lucky because I have no credit card debt and Brett has very little. We have been reading Dave Ramsey’s Total Money Makeover and it has given us the inspiration to start small and pay off our lowest balance credit card. I would love to go into 2019 with no credit card debt!
  2. Start House Hunting. I LOVE renting but the finance lover in me hates throwing our money away on something we don’t own. Brett and I sat down with a realtor this week and agreed to start taking baby steps towards purchasing our first home. We will start to look at houses in our price range and figure out what we like and dislike. We will shop around for different home loan lenders and find the best fit for us. We will not feel pressured into buying a house. We will buy when we are ready.
  3. Continue to make my health a priority. Guys, I have struggled for YEARS with migraines and daily headaches. I went almost two years with a constant headache and the pain has been debilitating. I made it a goal last quarter to really work with my Neurologist to find a solution that will work for me and my liver. The past month has been amazing. I still have headaches and the occasional migraine but the pain is finally manageable. I know I still have a long road ahead of me but this is the first time since 2011 that I have felt this good. *Knocks on wood*
  4. Being more productive after work. I am always exhausted after work. My days are stressful and I never feel like cooking or cleaning after work. I have made it my goal to meal plan and prep in order to make work nights easier. I will try to always go to bed with a clean kitchen, my lunch packed, and my outfit prepared for the next day.
  5. Focus on Healthy Living. I have gained a lot of weight since the wedding. I stopped eating healthy and working out. It was nice not to have to worry about fitting in an expensive wedding dress or looking good in pictures but it’s gotten bad. I am having a hard time looking in the mirror, fitting into my clothes, and having positive thoughts about myself. I just want to start eating healthier, walking more, and drinking more water. I don’t want to doing any extreme fad diet because they are bad for my mental health. I just want to respect my body again.
  6. Finish Our Wedding Thank You Notes. I am such a slacker and I hate myself for it. Writing all of these thank you notes stress me out. I am so grateful for everyone who helped us decorate, drive shuttle cars, and clean up after the wedding. I am thankful for everyone who brought us gifts or gave us money. It’s just so hard for me to convey how grateful I am in a note.

So there’s a few things that I am working on in the beginning of 2018. Financial freedom, healthy living, and future planning. It’s going to be a great year!

What are your goals for 2018?

Thanks for reading!

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