Migraine Update: Steroids & Trying Aimovig?

yuris-alhumaydy-mSXMHkgRs8s-unsplash.jpg

I had an appointment with my neurologist in September and was surprised with how helpful he was. Is it bad that I’m still so surprised to receive good medical advice? After having a terrible neurologist for years I’m so happy to have found a good one!

We started our appointment by talking about my migraines and how we haven’t been able to find anything to break the cycle. I was on day 8 of a migraine when I saw him and I’ve had constant head pain since December 2017. Late last year he had me do a round of steroids to try to break the cycle and I had mild success. We decided to try another round of steroids to see if they would help.

I had a couple of good days on the steroids where I didn’t need to take anything for the pain. I still had a headache but it was more mild than normal. Unfortunately, as I weaned off of the steroids my headaches came back full force and I ended up with another migraine week. I’ve had to take a couple sick days or leave early in the past few weeks because the pain has been unbearable.

My neurologist also upped the dosage of my preventive medication that I’ve been on for 9 months or so. I’m really hoping this helps!

We ended my appointment with talking about Amiovig which is an injectable migraine medication that was released in 2018. I’ve done a ton of research on Amiovig and am unsure if I’m willing to try it. I could experience some serious side effects and I’m deathly afraid of needles so I’m not sure how I’d handle giving myself a monthly injection. I’m still weighing the pros and cons but am excited that he’s willing to try something new! Have you tried Amiovig?

I’m feeling pretty hopeful after this last appointment. I just have to keep advocating for myself and fighting for a pain-free existence.

Footer

Photo by Yuris Alhumaydy on Unsplash

September According to my iPhone

IMG_4725

September was a good month! I was able to spend a lot of time with my family and I got a ton done at my house and my parent’s house. All in all, it was a really productive month!

We started September in Cleveland for the Cleveland Air and Water Show. You can read all about our adventure at the Rock and Roll Hall of Fame here.

IMG_4749

I celebrated 7 years of blogging in September! Life of Hayley has only been around for 6 years (in November!!!) but I had another blog before this one.  We had to write a blog in 2012 for my college English class. It mostly consisted of debate notes and current events relating to the 2012 election but it still sparked my love of blogging!

IMG_4751

IMG_4824

I started decorating our house for fall! Let me know if you want to see the rest of the decor! The buffet table and hutch have changed a lot since I took these pictures.

IMG_4760

Oscar, Bruno, and Megan had many doggy playdates! Oscar is the one on the arm of the couch smiling. Bruno always looks confused!

IMG_4763

We had many cookouts with my parents. My dad even brought out the pig roaster to make ribs for us and the neighbors one weekend.

IMG_4782

I took a trip to Saugatuck, MI with my work team for team building at the sand dunes! SO much fun!

IMG_4798

My dad found this dresser on the side of the road and re-painted it for our upstairs guest room. I’m in the process of decorating and making it look super cute! I ended up buying IKEA Hemnes lookalike knobs from Amazon for this dresser and the rest of our furniture.

IMG_4812

I got my first FabFitFun box! I wasn’t super impressed but I’m waiting to see how I feel about the next box. I only bought the seasonal membership so I can try a couple before committing to the annual.

IMG_4822

Lots and lots of baby cuddles from my nieces. ❤

IMG_4829

Oscar crawled under a towel while I was folding laundry and fell asleep. He’s the cutest little baby!

IMG_4835

My migraines have been really bad which is why I’ve been a bit MIA. I just don’t feel good and I don’t know if/when I’ll feel better. I had a good visit with my Neurologist and I go back again in a couple of weeks to discuss my options.

How was your September?

Footer

Migraine Update: Elimination Diet & New Meds

carolyn-v-dPkn4562j3E-unsplash.jpg

Everyday I’m worried about when I will have my next migraine. I always have pain medication on hand and an excuse at the tip of my tongue to leave early. I avoid making plans outside of work and family obligations because I never know how I will feel on that day. I’ve let my fear of pain control my life for years and the anxiety that comes along with this fear holds me back from doing what I love to do.

My migraines are genetic and I can go on and on about all of the reasons why I may never be completely pain free. My current neurologist is a headache specialist. He’s a great guy who wants to help me live my best life. But he doesn’t have all the answers. He’s willing to try new things in hopes of them working but a lot of it is up to me.

It was up to me to realize that I was taking too much ibuprofen. It was up to me to realize that I wasn’t fueling my body properly. It was up to me to realize that I was feeling sorry for myself and needed to change.

Last summer I read Grain Brain by David Perlmutter which was recommended to me by my physical therapist. I learned about gluten, carbs, and sugar and how they interact with our brains. I wanted to try an elimination diet but it seemed like too much work at the time.

This summer I’m willing to do anything it takes to live a pain-free life. I’ve changed my lifestyle to balance the amount of gluten, carbs, and sugars I am eating. I’ve made my health a priority.

It never feels like enough though. I’m on day 3 of a debilitating migraine right now. I’ve had to leave work early and sit in the dark with ice packs for hours at a time. I’ve had to miss meetings and time with my family. I’ve been angry at my messed up brain for constantly hurting. I’ve told myself that I’m a terrible employee and co-worker because I can’t stand being in the office when I feel like this.

I’m also having trouble sleeping again. I can stay up pretty much all night and have gotten used to functioning on very few hours of sleep. I feel like a zombie.My neurologist prescribed me a medication to help me sleep since I was going days without sleeping for more then a couple of hours. He also prescribed me a pain medication for when I have migraines.

I didn’t like the sleeping pills. I was dead asleep within an hour on the couch. Brett had to help me get to bed. I don’t like not knowing what’s going on and feeling helpless. The pain medication didn’t help and I don’t plan on taking it again. I ended up being sick to my stomach while on it.

I’ve felt pretty angry about my migraine situation lately but I’m trying to do my best to take care of myself. Whatever that means. I went 5 days without a migraine when I first started the elimination diet which is a long period of time for me.

Hopefully I will have a positive migraine update for you soon!

Footer
Photo by Carolyn V on Unsplash

Five on Friday #11

link-hoang-31747-unsplash.jpg

Hooray! We made it to Friday! This was my first week back to work after vacation and I’m exhausted.

  1. Fourth of July is next weeks which means that it’s our biggest airshow week of the season. I’m exhausted just thinking about it! The fourth was always my favorite growing up because both sides of my family would get together to celebrate America and my sister’s birthdays. I loved having everyone together at the lake.
  2. We went to Oregon last week on vacation with my friend, Anna Sophie, and her boyfriend. You might remember her from my study abroad posts. We hadn’t seen each other since leaving London in 2015 so it was so nice to catch up! I’m hoping to write a whole post about our trip soon.
  3. Before vacation I was really motivated on my health and fitness journey. My goal is to not only lose weight but to accept my body at every stage along the way. I’ve spent the past couple of years being really terrible to myself with the way I talk about and treat my body and I know that needs to stop. Body image is a huge issue in our current culture and I’ve really had to step back from social media in order to get my head back in a good place.
  4. Going on vacation has really made me realize that I need to spend more time away from work. My work-life balance has gotten much better since last year but I still worry and think about work way too much. I need to step back every once in a while and just worry about me.
  5. I had a neurologist appointment on Monday afternoon and I’m thinking about doing a Migraine update post to share what’s been going on. I haven’t done an update post in awhile because there hasn’t been any updates.

Do you have any plans for this weekend?

Footer

Photo by Link Hoang on Unsplash

National Migraine Awareness Month

June National Migraine and Headache Awareness Month

I’m sure you have heard of other National “insert illness” Awareness Months before. June is the awareness month for migraines and headaches. The goal is to raise awareness and recognition for migraine treatment, patients, and more.

As a migraine sufferer I know how hard it is to have other people understand what it’s like to live day to day with the constant pain of a headache or migraine. I understand how debilitating and lonely it can be. What gives me hope is knowing that there are millions of other people who want to raise awareness too. People who want to share their stories and join the fight to find new research and treatment options.

My migraine story started when I was in high school and have continued throughout my twenties. I don’t know if I will ever not have a headache or migraine but the odds seemed to be stacked against me. However, three new treatments options were released in 2018 so I have hope that something will be created that will help me.

If you are struggling with migraines or headaches, just know that you aren’t alone. There are millions of other people in the world who are also suffering which is why it’s so important to raise awareness. If we all stand together we have the opportunity to have our stories make an impact and bring about real change.

Migraines are an invisible illness. When you call in sick from work with a “headache” most people think you are lying or should suck it up. But for some people, including me, living with the constant head pain is reality. We are told that we look healthy and not chronically ill.

Well, this is what chronic migraine looks like. I drag myself out of bed every morning, brush my hair, and throw on enough makeup to look somewhat decent. I don’t feel good, I want to go back to bed, but I go to work and continue living my life the best I can. If I really don’t feel good I work from home or take a sick day. I know I’m lucky to work for an amazing company but I’ve heard other people’s stories about being fired for not being able to come into work.

This pain could ruin my life if I let it. I could stay in bed all day and feel sorry for myself. But I won’t. I’m out living my life and talking about how I feel. I want spread awareness. I want people to know that headaches are a real problem. I want doctors to find new treatment options. I want to be taken seriously.

I won’t let migraines ruin my life. Some days are better than others. Some days feel like the worst days of my life. But I know that things could be worse. I’m still able to work, own a house, be a dog/cat mom, and travel. Migraines make all of these things so much harder but it’s rewarding to know that I am able to overcome the pain most days and accomplish big things.

June 21st is the Annual Shades for Migraine Awareness Day led by the Association of Migraine Disorders. If you see people on social media posting pictures of themselves wearing sunglasses with the hashtags #shadesformigraines and #MHAM this is why. These people are sharing their support for the millions of people worldwide with migraines.

I’ll be wearing my sunglasses on June 21st. Will you?

Footer

Image via American Migraine Foundation

 

6 Migraine Essentials

Migraine Essentials

I never thought that I would be blogging about my migraines.  I started getting them when I was young and I felt really alone in my struggle but since I started blogging I’ve found so many who can relate to my story. I hate that there are so many men and women struggling with migraines but it does help me to know that I’m not alone and there are a few things that can help.

Over the years I have come up with a list of essentials that I use when I have a migraine or in order to prevent migraines. My number one tip is to always stay hydrated. Everyone has their own migraines triggers but dehydration seems to be a very common one. I drink a ton of water everyday in order to make sure that I am hydrated. Being hydrated is the number one rule for me for my migraine prevention.

Here are six essentials that I have found work for me when I have a migraine.

  1. Headache Hat – This is basically an ice pack that wraps around your head and has velcro straps so that you can adjust the pressure. Basically it’s the best invention ever. You can buy one on Amazon for $40 and it’s worth every penny. I am also known to tie ice packs around my head with a scarf. It’s not the best look but it works!
  2. Electrolyte water or supplement – Like I said, hydration is key. But when I get a migraine I don’t want to do anything and that includes drinking water. I always keep a big bottle of electrolyte water in the fridge along with a Gatorade so that I can quickly hydrate during a migraine. You can also buy electrolyte packets to add to normal water.
  3. Blackout curtains – I am very sensitive to light on a normal day to day basis. When I have a migraine my sensitivity is even worse. We have blackout curtains in our bedroom so that no matter what time of day it is I can curl up in bed and try to rest. I also sleep on the couch in the basement when I’m in a lot of pain because it’s dark, cold, comfy, and quiet.
  4. Caffeine – This is a tricky one and can kind of work differently for everyone. I don’t drink coffee and the tea I do drink has very little caffeine. When I have a migraine I like to grab a coke/pepsi for a quick dose of caffeine. I have found the Excedrin Migraine doesn’t work for me and this method does.
  5. Ice roller – My neck tends to get really stiff during a migraine. I had physical therapy for my migraines so I know a few stretches that can help. But what helps more is having this ice roller ready to go in the freezer to roll over my neck and forehead. It feels so nice!
  6. Comfy Clothes – This sounds ridiculous but when I have a migraine I am looking for something to provide comfort. Putting on my favorite pair of pajamas or sweatpants automatically makes me feel better. Comfy clothes don’t make the pain go away but they make it feel more bearable than being in pain and wearing jeans, for example.

What are your migraine essentials?

Footer

Photo by Annie Spratt on Unsplash

Holding Up the Universe by Jennifer Niven

Holding up the Universe by Jennifer Niven

2019 has been a great year for reading so far! I discovered the world of YA literature last year and fell in love! I read All The Bright Places by Jennifer Niven earlier this year and was it really impacted me (seriously, go read it if you haven’t already). Jennifer’s writing style is powerful and I knew I had to read more. I already have a third book lined up by her to read in the near future.

Summary:

Everyone thinks they know Libby Strout, the girl once dubbed “America’s Fattest Teen.” But no one’s taken the time to look past her weight to get to know who she really is. Following her mom’s death, she’s been picking up the pieces in the privacy of her home, dealing with her heartbroken father and her own grief. Now, Libby’s ready: for high school, for new friends, for love, and for EVERY POSSIBILITY LIFE HAS TO OFFER. In that moment, I know the part I want to play here at MVB High. I want to be the girl who can do anything. 

Everyone thinks they know Jack Masselin, too. Yes, he’s got swagger, but he’s also mastered the impossible art of giving people what they want, of fitting in. What no one knows is that Jack has a newly acquired secret: he can’t recognize faces. Even his own brothers are strangers to him. He’s the guy who can re-engineer and rebuild anything in new and bad-ass ways, but he can’t understand what’s going on with the inner workings of his brain. So he tells himself to play it cool: Be charming. Be hilarious. Don’t get too close to anyone.

Until he meets Libby. When the two get tangled up in a cruel high school game—which lands them in group counseling and community service—Libby and Jack are both pissed, and then surprised. Because the more time they spend together, the less alone they feel. . . . Because sometimes when you meet someone, it changes the world, theirs and yours.

Review:

I needed to read this book. For the past year I have been beating myself up about gaining weight and Libby made me want to love myself again. Libby is the definition of a strong female lead who picks herself up off the ground and makes big things happen. She is brave, resilient, and unstoppable. I also love how she is so supportive of other girls in her class. I love when girls support girls instead of ripping each other apart.

And then we have sweet Jack Masselin who so badly wants to be a good guy but his undiagnosed neurological condition makes it hard for him. The common theme with Jack is peer pressure to do things he wouldn’t otherwise think to do. The “shitty” thing he does actually brings him closer to Libby which in the long run may save him from himself.

This was another quick read for me. I just couldn’t put it down! If I was reading it on a weekend I probably would have read it in under 24 hours. The characters, the plot, and the message were so good and made me want to keep reading. The ending was perfect too.

Favorite Quotes:

“I want you to know I’m rooting for you.’ Sometimes we need to hear that, even from a stranger.”

“We never know how long we have. We’re never guaranteed tomorrow. I could die right now, right here.”

“One of the worst things a pretty girl can say to a fat girl is You look really pretty.”

“Life is too short to judge others. It is not our job to tell someone what they feel or who they are. Why not spend some time on yourself instead? I don’t know you, but I can guarantee you have some issues you can work on. And maybe you’ve got a fit body and a perfect face, but I’ll wager you’ve got insecurities too, ones that would keep you from stripping down to a purple bikini and modeling it in front of everyone.

As for the rest of you, remember this. YOU ARE WANTED. Big, small, tall, short, pretty, plain, friendly, shy. Don’t let anyone tell you otherwise not even yourself.

Especially not yourself.”

“Everyone in my life is a stranger, and that includes me.”

“It’s my experience that the people who are most afraid are the ones who hide behind mean and threatening words.”

“Dear friend, You are not a freak. You are wanted. You are necessary. You are the only you there is. Don’t be afraid to leave the castle. It’s a great big world out there. Love, a fellow reader”

“We’re all weird and damaged in our own way. You’re not the only one.”

“People are shitty for a lot of reasons. Sometimes they’re just shitty people. Sometimes people have been shitty to them and, even though they don’t realize it, they take that shitty upbringing and go out into the world and treat others the same way. Sometimes they’re shitty because they’re afraid. Sometimes they choose to be shitty to others before others can be shitty to them. So it’s like self-defensive shittiness.”

Rating: 5/5 Stars

Libby and Jack may not be real but they can teach you a thing or two about life. I am giving Holding up the Universe 5 stars because it made me think, feel, and opened my eyes to other’s thoughts and feelings.

I love reading books that make me want to take action when I’m done. This one motivated me to put myself out there again and try to be the healthiest version of myself. It motivated me lose weight because I love myself and not because I hate my body.

Once again, Jennifer Niven is a brilliant writer. I’m pretty positive I will love anything Jennifer writes and am already looking forward to reading the next one.

What’s your favorite book at the moment?

Lifestyle Blog, Life of Hayley