Migraine Update: Steroids & Trying Aimovig?

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I had an appointment with my neurologist in September and was surprised with how helpful he was. Is it bad that I’m still so surprised to receive good medical advice? After having a terrible neurologist for years I’m so happy to have found a good one!

We started our appointment by talking about my migraines and how we haven’t been able to find anything to break the cycle. I was on day 8 of a migraine when I saw him and I’ve had constant head pain since December 2017. Late last year he had me do a round of steroids to try to break the cycle and I had mild success. We decided to try another round of steroids to see if they would help.

I had a couple of good days on the steroids where I didn’t need to take anything for the pain. I still had a headache but it was more mild than normal. Unfortunately, as I weaned off of the steroids my headaches came back full force and I ended up with another migraine week. I’ve had to take a couple sick days or leave early in the past few weeks because the pain has been unbearable.

My neurologist also upped the dosage of my preventive medication that I’ve been on for 9 months or so. I’m really hoping this helps!

We ended my appointment with talking about Amiovig which is an injectable migraine medication that was released in 2018. I’ve done a ton of research on Amiovig and am unsure if I’m willing to try it. I could experience some serious side effects and I’m deathly afraid of needles so I’m not sure how I’d handle giving myself a monthly injection. I’m still weighing the pros and cons but am excited that he’s willing to try something new! Have you tried Amiovig?

I’m feeling pretty hopeful after this last appointment. I just have to keep advocating for myself and fighting for a pain-free existence.

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Photo by Yuris Alhumaydy on Unsplash

6 Migraine Essentials

Migraine Essentials

I never thought that I would be blogging about my migraines.  I started getting them when I was young and I felt really alone in my struggle but since I started blogging I’ve found so many who can relate to my story. I hate that there are so many men and women struggling with migraines but it does help me to know that I’m not alone and there are a few things that can help.

Over the years I have come up with a list of essentials that I use when I have a migraine or in order to prevent migraines. My number one tip is to always stay hydrated. Everyone has their own migraines triggers but dehydration seems to be a very common one. I drink a ton of water everyday in order to make sure that I am hydrated. Being hydrated is the number one rule for me for my migraine prevention.

Here are six essentials that I have found work for me when I have a migraine.

  1. Headache Hat – This is basically an ice pack that wraps around your head and has velcro straps so that you can adjust the pressure. Basically it’s the best invention ever. You can buy one on Amazon for $40 and it’s worth every penny. I am also known to tie ice packs around my head with a scarf. It’s not the best look but it works!
  2. Electrolyte water or supplement – Like I said, hydration is key. But when I get a migraine I don’t want to do anything and that includes drinking water. I always keep a big bottle of electrolyte water in the fridge along with a Gatorade so that I can quickly hydrate during a migraine. You can also buy electrolyte packets to add to normal water.
  3. Blackout curtains – I am very sensitive to light on a normal day to day basis. When I have a migraine my sensitivity is even worse. We have blackout curtains in our bedroom so that no matter what time of day it is I can curl up in bed and try to rest. I also sleep on the couch in the basement when I’m in a lot of pain because it’s dark, cold, comfy, and quiet.
  4. Caffeine – This is a tricky one and can kind of work differently for everyone. I don’t drink coffee and the tea I do drink has very little caffeine. When I have a migraine I like to grab a coke/pepsi for a quick dose of caffeine. I have found the Excedrin Migraine doesn’t work for me and this method does.
  5. Ice roller – My neck tends to get really stiff during a migraine. I had physical therapy for my migraines so I know a few stretches that can help. But what helps more is having this ice roller ready to go in the freezer to roll over my neck and forehead. It feels so nice!
  6. Comfy Clothes – This sounds ridiculous but when I have a migraine I am looking for something to provide comfort. Putting on my favorite pair of pajamas or sweatpants automatically makes me feel better. Comfy clothes don’t make the pain go away but they make it feel more bearable than being in pain and wearing jeans, for example.

What are your migraine essentials?

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Photo by Annie Spratt on Unsplash

Migraine Update: Feeling Discouraged

Migraine Update: Feeling Discouraged

It’s been over a month since my last migraine update and honestly not much has changed.

I saw my primary care doctor about 3 weeks ago and she referred me to a new neurologist at the other hospital in my town. There are two hospitals where I live and you either go to one or the other for everything health related not both. I have always gone to one but my doctor recommended that I try the other.

So, she sent the referral to my neurologist who had his medical assistant call me. Apparently, he can choose not to discharge me from his care if he feels that he can still help me. The MA asked me for the reason I wanted to change doctors and I was really honest with her. 1. I have been seeing him for over five years and we have only tried two treatment options and neither worked. 2. I want a second opinion.

The MA was supposed to call me back but that was over two weeks ago. I called yesterday for an update and he hasn’t even looked at my file yet. I tried to explain my frustration and pain but I really felt like it fell on deaf ears. To make matters worse, the new neurologist I wanted to see has switched to my current neurologist’s practice which will make the switch even harder. Apparently it’s rare that they will allow you to switch neurologists within the same practice and it sounds like that will be the case for me.

Yesterday I got off the phone and cried. It’s so discouraging to feel like you are headed in the right direction one second and then back at the beginning the next. This journey has not been easy and I’m sick of pretending like it has. I pretend everyday that things are okay and I feel fine. I don’t know how much longer I can keep doing all of the things I am doing. I try to put on this brave face but anytime someone asks me how I am feeling I fall apart.

Once again I am faced with a couple of options. The first is that I go back to my neurologist and try to talk him. I don’t think that this will be happening. The second is to find another neurologist at the other practice and see if he/she is accepting new patients. The third option is to finally make an appointment at the University of Michigan Neurosciences which I have been trying to avoid because of the distance and potential cost.

I have not had a headache free day at all in 2018 and that makes me angry. I’m not a neurologist and I have done everything that I can on my own to fix myself. I need a professional’s help and that professional will not be my current neurologist. I also suck at confrontation and am having a hard time advocating for myself. Hopefully if I do have to go back to my neurologist I can find a patient advocate to help me.

Anyway, that’s where I’m at with my journey to a pain-free life. It hasn’t been easy and I doubt it will be easy at any point. I am just hoping that somewhere down the line I can find a solution that will work for me. I’m trying not to give up hope. I am not currently taking any medication at all besides still overusing ibprofen in order to live a “normal” life.

Thanks for reading!

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